We layered up, we laced up, and I pinned my little zippered heart to my shirt. We were off to the races – actually, we were off to the Congenital Heart Walk – I guess running is not a favored sport for a bunch of heart patients. That’s ok with me – running means no talking, and subsequently no eating, and I like to do both.
This was my second time participating in the Congenital Heart Walk, a national walk to raise funds and awareness for congenital heart disease.
I asked for 20 friends to donate between $10-$25 so that research and medical advancements can be made for surviving congenital heart patients. I am humbled and so thankful for the 20 friends who helped me raise $525 and for everyone who helped me spread awareness by sharing my story.
There are so many amazing causes and a zillion places that would love a listening ear and a donation, but I wanted to say thank you, from the bottom of my zippered heart, for sharing in my journey for just a moment.
Your time and your donations will not be wasted – in fact, they are groundbreaking for a disease that affects so many, but has such a tiny voice. Here’s a little comparison chart that I learned about at the Adult Congenital National Conference this year:
Just to put it in perspective, there are an estimated 2 million children and adults with congenital heart defects, and just over 3 million in revenue for research and advocacy which totals to about $1.65 per heart patient. Compared with Cystic Fibrosis that averages around 406 million in revenue for research and advocacy for about 30,000 patients which totals to about $13,533 per patient.
This is not to say these other diseases don’t need attention, research, and advocacy, I am just simply highlighting this emerging field of congenital heart disease and the need for research and advocacy as children begin to survive into adulthood.
So this is a thank you to all of you who participated in this little campaign. I am honored by your generosity and your compassion to see me, and others like me, receive quality medical care and support. Thank you thank you thank you!
Here are a few more pictures from the 2014 Congenital Heart Walk so you can see how much fun it is (i.e. you don’t have to sweat a lot and you get lara and bobo bars at the end) and come walk with us next year!